Absolutely crap night’s sleep. Fell asleep ok, no podcasts needed. But I was awake at 1:04am. I had to come downstairs to get my air pods, and I picked up the magnesium spray whilst I was at it. Also went to the toilet to see if that would help. The spray really worked on my legs. If anything, it made them feel heavy, which then scared me as I thought I would be stuck not being able to move my legs! 

Listened to one podcast, no sign of any sleep. Listened to another, still awake. Listened to a third one and then thought it would be better if I didn’t listen to anymore and to try and get back to sleep. At 4am I heard an aeroplane take off. At 4:45am I heard the noisy motorbike do its usual trip through Rayleigh. A little while after that, the foxes decided to turn up and do some screaming, to which a crow then shouted at them, and they stopped. The alarm went off at 6:30am, so that sleep was a waste of time. Hannah was at work at 7am, so she came in to say goodbye and she left Toast with me. I then feel asleep and was woken by Simon at 7:15am. 

Got the hospital and saw the picc nurse who fitted my picc line. She was happy with the way everything is healed but doesn’t know why it would still be bleeding. So, she has put some more glue on the metal bit that goes into my arm. They checked to make sure my picc cover wasn’t too tight, it isn’t. It might be where I am rolling on the arm during the night, so I must make sure not to roll on that side. They are always so nice to me so it was lovely to see them again, I just hope this doesn’t become a regular occurrence or they are saying it would mean fitting the picc line in the other arm instead. 15 minutes later I was back in the car and on my way back home. 

I’ve been shattered but unable to sleep all day. I feel like a walking zombie. 

It’s 1:28am and I was going to go to bed earlier than this, but I’m scared it’s going to be another unsuccessful night’s sleep again. Oh well, another night with magnesium spray and listening to podcasts. I swear it’s the steroids. Thankfully they finish tomorrow, just as I start the injections that make my bones ache. Yay, living the dream. And it’s felt like one day has lasted a whole weekend. I’m not sure if I filled my water quota today but I have been to the toilet 4 times. So that’s double my usual amount. Winning. 

Oh, and I called the doctors surgery to ask about the district nurses that can do my blood tests. The receptionist said she thought it was only the housebound patients that have that, but she will call and check. A little while later, she calls me to say that the district nurse can do it but the referral should’ve come from the oncology department and not the doctor’s surgery. So, another new thing I have learned! The lovely district nurse has booked me in for the day before round 3. She said about my weekly flush, but I said I’m at the hospital every week for chemotherapy so they do it at the chemo unit. I’ve had a lot of help today, and I’m grateful for all the help these lovely ladies have given to me today. Just a shame they can’t help me sleep.  

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